The Yacht

Many years in High tech, business, consulting. Suddenly a few months ago my 12 year old son was diagnosed with DIPG and our entire lives changed. One surprise and shocking thing after another has been realized, and here I find a place I believe we can collaborate to do something good. Leveraging my skills in all the areas mentioned above I am looking to collaborate with medical researchers and doctors here to take all the research studies and new insights I find and (sometimes) understand and help us to build a more clear picture of DIPG, all the therapies in development, the proposed areas they are supposed to target, if they didnt work, why, and why the next line of testing coming up would be more effective... What I want to do is essentially have an independently and privately compiled accurate and constantly updated exact status of where we are in DIPG in all areas. I have perhaps dozens of studies and findings and discoveries that just often times sit there. While it is beyond our scope to do anything more than categorize, organize and connect the already established medical dots, this is exactly the goal I'm trying to achieve.